Motor Neurone Disease - A Guide for Health and Social Care Staff
Motor Neurone Disease - A Guide for Health and Social Care Staff - Understanding and Supporting Individuals with Motor Neurone Disease
Presentation (in sections), 12 Handouts and End of Session Assessment (Multiple Choice).
All editable to suit your training session and audience should you wish to edit.
This presentation (77 slides in sections) equips health and social care staff with the knowledge and skills to support individuals with MND.
The session can be used as it has been written or you can choose to use specific sections.
Aims and Objectives:
Overall Aim:
To equip staff in adult care settings with the knowledge, skills and confidence to provide compassionate, person-centred care for individuals living with Motor Neurone Disease (MND), while addressing their unique physical, emotional and social needs.
Learning Objectives:
Understand the key characteristics, progression and impact of MND on individuals and their families.
Recognise and address the complex care needs associated with MND, including communication, nutrition, mobility and respiratory support.
Apply person-centred approaches to support dignity, independence and quality of life.
Collaborate effectively with multidisciplinary teams to deliver holistic and responsive care.
Presentation (77 Slides)
Aim and Objectives
Introduction
SECTION - Introduction to Motor Neurone Disease (MND)
Definition and Overview of MND
Types of MND
Causes and Risk Factors
Prevalence in the UK
SECTION - Signs and Symptoms
Early Signs of Motor Neurone Disease
Progression of Symptoms
How Symptoms Can Vary Between Individuals
SECTION - Diagnosis and Prognosis
Process of Diagnosis
Prognosis and Life Expectancy
Emotional and Psychological Impact
SECTION - Care and Support Needs
Person Centred Approach
Speech Difficulties – Communication Strategies
Supporting Independence and Dignity
Assisting With Daily Living - Feeding
Assisting With Daily Living - Toileting
Assisting With Daily Living - Mobility
SECTION - Nutritional and Feeding Support
Managing Challenges with Swallowing
Modified Diets for Safe Swallowing
Safe Swallowing
Feeding Tubes - Nasogastric (NG) Tube
Feeding Tubes - Percutaneous Endoscopic Gastrostomy (PEG) Tube
When to Consider a Feeding Tube
SECTION - Respiratory Care
Recognising Breathing Difficulties
Managing Breathing Difficulties
Palliative Respiratory Care
Non Invasive Ventilation and Role in Care
When is NIV Recommended?
Palliative Care for End-of-Life Respiratory Challenges
End of Life Discussions and Planning
SECTION -Legal and Ethical Considerations
Mental Capacity Act and Decision-Making
Assessing Mental Capacity
Advance Care Planning (ACP)
Do Not Attempt Resuscitation (DNAR) Orders and Ethical Considerations in Care
What is Advance Care Planning (ACP)?
Key Components of Advance Care Planning
The Role of Advance Directives and Ethical/Legal Considerations
SECTION - End of Life Care
Understanding the Final Stages of MND
Key Signs that Indicate End of Life
Providing Compassionate End of Life Care
Managing Physical Comfort
Supporting Emotional and Psychological Well-being
Preserving Dignity and Autonomy
Family and Carer Involvement
SECTION - Role of Health and Social Care Professionals
Multidisciplinary Team Involvement
Collaboration and Communication Within the Care Team
Role of Staff in Identifying and Addressing Changes in the Individual’s Needs
SECTION - SUMMARY AND KEY POINTS
Key Takeaways
References and Further Reading
Word Documents (13)
Understanding Motor Neurone Disease Handout
Signs and Symptoms of Motor Neurone Disease (MND) Handout
Diagnosis and Prognosis of Motor Neurone Disease (MND) Handout
Impact of Motor Neurone Disease (MND) on the Individual Handout
Care and Support Needs for Individuals with Motor Neurone Disease (MND) Handout
Nutritional and Feeding Support for Individuals with Motor Neurone Disease (MND) Handout
Respiratory Care for Individuals with MND Handout
Equipment and Adaptations for Individuals with Motor Neurone Disease (MND) Handout
Legal and Ethical Considerations for Individuals with Motor Neurone Disease (MND) Handout
Supporting Families and Carers of Individuals with Motor Neurone Disease (MND) Handout
End-of-Life Care for Individuals with Motor Neurone Disease (MND) Handout
Role of Health and Social Care Professionals in Motor Neurone Disease (MND) Care Handout
End of Session Multiple Choice Assessment
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